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1heather@charter.net
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      03-29-2005, 04:33 AM
My son will be 3 in April. He was diagnosed with congenital nystagmus
at 6 months. He uses his vision extremely well, however, he has other
slight developmental delays like sensory integration. Are the two
related? Also, I've been hearing lately that high doses of magnesium
and thiamin can cure nystagmus. Does anyone know anything about that?

 
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drfrank21@gmail.com
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      03-29-2005, 06:15 AM

http://www.optometryforums.com/(E-Mail Removed) wrote:
> My son will be 3 in April. He was diagnosed with congenital

nystagmus
> at 6 months. He uses his vision extremely well, however, he has

other
> slight developmental delays like sensory integration. Are the two
> related? Also, I've been hearing lately that high doses of magnesium
> and thiamin can cure nystagmus. Does anyone know anything about

that?


Usually, early age nystagmus is associated with other vision disorders
so
hopefully your son will not be affected. It's tough to say if his other

developmental delays has any direct relationship with the nystagmus
but I guess it's a possiblilty that it's a cause.

There really isn't any cure for congenital nystagmus- there is
treatment
to try to minimalize it (finding the "null point" for instance). I
haven't
heard of any study regard mega-dosing magnesium or thiamin and
I'd be very concerned about trying it on a toddler.

frank

 
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g.gatti@agora.it
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      03-29-2005, 06:58 PM

(E-Mail Removed) wrote:
> My son will be 3 in April. He was diagnosed with congenital

nystagmus
> at 6 months. He uses his vision extremely well, however, he has

other
> slight developmental delays like sensory integration. Are the two
> related? Also, I've been hearing lately that high doses of magnesium
> and thiamin can cure nystagmus. Does anyone know anything about

that?

If you really want to help your son with the only treatment that works,
that is rest treatment, please read the book Stories from the Clinic by
E.C. Lierman.

You may find some digitalized untrustful copies on Internet.

I have reprinted it on paper.


http://TheCentralFixation.com

 
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Neil Brooks
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      03-29-2005, 06:59 PM
(E-Mail Removed) wrote:

>
>(E-Mail Removed) wrote:
>> My son will be 3 in April. He was diagnosed with congenital

>nystagmus
>> at 6 months. He uses his vision extremely well, however, he has

>other
>> slight developmental delays like sensory integration. Are the two
>> related? Also, I've been hearing lately that high doses of magnesium
>> and thiamin can cure nystagmus. Does anyone know anything about

>that?
>
>If you really want to help your son with the only treatment that works,
>that is rest treatment, please read the book Stories from the Clinic by
>E.C. Lierman.
>
>You may find some digitalized untrustful copies on Internet.
>
>I have reprinted it on paper.
>
>
>http://TheCentralFixation.com


Peruse this newgroup and you'll quickly learn that Rishi is to be
aggressively and actively ignored.

Best of luck with your son's eye issues....
 
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g.gatti@agora.it
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      03-29-2005, 10:53 PM

Neil Brooks wrote:

> >http://TheCentralFixation.com

>
> Peruse this newgroup and you'll quickly learn that Rishi is to be
> aggressively and actively ignored.


Yes, you can ignore me very easily, but the truth will hunt you till
your very end.

Do you think that by following the wrong treatments his son will get
any benefit?

 
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Ken
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      04-01-2005, 04:41 PM
you may want to look at http://www.nystagmus.org. They have mailing lists,
etc. for support and information.

<(E-Mail Removed)> wrote in message
news:(E-Mail Removed) oups.com...
> My son will be 3 in April. He was diagnosed with congenital nystagmus
> at 6 months. He uses his vision extremely well, however, he has other
> slight developmental delays like sensory integration. Are the two
> related? Also, I've been hearing lately that high doses of magnesium
> and thiamin can cure nystagmus. Does anyone know anything about that?
>



 
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andrewedwardjudd@hotmail.com
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      04-02-2005, 11:35 PM
There was discussion on congenital nystagmus a while back here using
biofeedback with success

http://groups-beta.google.com/group/sci.med.vision/msg/601b2a1eb625ff6f?as_umsgid=9shm3g$9gn$(E-Mail Removed). mindspring.net

 
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