Help me find a clinic to correct Detached Retina

Discussion in 'Optometry Archives' started by topwebchoice, Mar 17, 2006.

  1. topwebchoice

    topwebchoice Guest

    My local clinic (Portland, Oregon) wants to use old fashioned surgical
    methods.

    I'd prefer more modern gas bubble therapy.

    Any suggestions on clinics in the Northwest which can handle more up to
    date detached retina repair?

    Thanks,

    30% and Going Blind Fast.....
     
    topwebchoice, Mar 17, 2006
    #1
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  2. Don't mess around. Get to the closest retinologist wherever he/she is
    ASAP. What do you mean old fashioned? If they need to strap your eye,
    let them do it. You'll also get a bubble. Both are up to date.

    w.stacy, o.d.
     
    William Stacy, Mar 17, 2006
    #2
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  3. topwebchoice

    acemanvx Guest

    why are you posting here about a retina detachment? dude, get emergency
    help NOW!
     
    acemanvx, Mar 17, 2006
    #3
  4. topwebchoice

    Dan Abel Guest

    Fast isn't exactly the concept. Immediate is the concept. Once you go
    blind, completely or partially, you don't ever get it back. Get this
    fixed. Now. Not tomorrow, not tonight, right now.
     
    Dan Abel, Mar 17, 2006
    #4
  5. topwebchoice

    topwebchoice Guest

    To clarify, I've just seen the ophthalmologist, who diagnosed it. I
    had already set the appt. with the retinologist (but that is not until
    the 24th - next week/fri). I would have preferred to see someone before
    then but this is where my opthalmologist wants me to go.

    I just wanted to know who (which clinics) are up-to-date on their
    methods. Unless things have changed since the last time I had to find a
    specialist, there is quite a difference in the expertise and quality of
    care from clinic to clinic. At one time, I could only find a couple of
    specialists in pathological myopia in the US, and they were both in
    southern CA.

    I have been seen for years here in Oregon by ophthalmologists, reported
    floaters and flashes and loss of vision, and never before was it even
    suggested that I might be headed for retinal detachment... I'm
    disappointed so far in the level of expertise up here, so you'll
    forgive me for making a few inquiries as to clinic / dr. suggestions ;)
     
    topwebchoice, Mar 18, 2006
    #5
  6. topwebchoice

    Dan Abel Guest

    Perhaps we aren't understanding. Do you actually have a detached retina
    right now, or just a risk of it? There are preventative treatments,
    which could be scheduled in the future.
     
    Dan Abel, Mar 18, 2006
    #6
  7. topwebchoice

    topwebchoice Guest

    Right now, this moment. Up until last night, had 30% total loss of
    vision due to retinal detachment in left eye. 15% in right eye. Lost
    10% more today in the left eye (est). Called the Retina Northwest
    today, asked if they could step up the appt. (was for 28th). They gave
    me an appointment for the 24th instead.

    Should I consider another clinic?

    Any suggestions?
     
    topwebchoice, Mar 18, 2006
    #7
  8. topwebchoice

    acemanvx Guest

    The longer you wait, the more vision youll lose. I cant believe the
    nerve of them! You may become 100% blind in a few days! I suggest you
    go to the hospital now! I dont even think you are for real. Here you
    are with 50% vision loss and you are sitting by the computer and typing
    and waiting patiently for an appointment while you lose more and more
    vision!!!!!!!!!!!!!!!!!!!!!!
     
    acemanvx, Mar 18, 2006
    #8
  9. topwebchoice

    Dan Abel Guest

    I really, really don't understand. If you have a retinal detachment,
    you need to be seen *right now*. Not tomorrow, not later tonight, but
    *right now*. Go to the emergency room in the hospital, and demand
    immediate treatment. Tell them that you are losing your vision, and it
    isn't ever coming back, and if they don't fix it *right now*, they are
    in big trouble.

    I had a detachment last summer, and I was in the OR within 4 hours.
     
    Dan Abel, Mar 18, 2006
    #9
  10. I think there has got to have been a communications breakdown. This
    whole thread makes no sense, unless the patient is actually somewhere
    like Portland, Iraq.

    w.stacy, o.d.
     
    William Stacy, Mar 18, 2006
    #10
  11. topwebchoice

    Dan Abel Guest

    This newsgroup has some communications problems. We don't need to name
    names. We just need to communicate what the casual reader needs to know.
     
    Dan Abel, Mar 18, 2006
    #11
  12. topwebchoice

    topwebchoice Guest

    I don't understand. If it is such great danger to wait until the 28th,
    why would a retina specialty clinic like Retina Northwest (Portland,
    OREGON) not make an appointment for at least the following day to two?

    My ophthalmologist (MD) referred me to the clinic (Retina Northwest) -
    but I'm now worried from what I'm being told here that they (Retina
    Northwest) is not too professional. If it was so risky to wait until
    the 28th, would they (the 'retina experts') do that?

    Please explain....I'm concerned the quality of medical attention here
    in Portland, Oregon is very poor.
     
    topwebchoice, Mar 19, 2006
    #12
  13. topwebchoice

    Quick Guest

    Is it possible that the clinic is not aware that you
    have a detached retina? Perhaps it was communicated
    as a general referal for an initial consultation? Maybe
    you could call there and ask that a doctor be made
    aware of your immediate condition?

    -Quick
     
    Quick, Mar 19, 2006
    #13
  14. topwebchoice

    Quick Guest

    Your reaction is also a bit odd. It's been days and the
    doctors here implied your your described condition had
    immediacy in terms of hours. Your response hasn't seemed
    go past expressing concern over the medical expertise
    available in your area. Have you even called anyone?
    The refering doctor? To tell him they gave you an appointment
    for the 28th? The clinic to see if a doctor there is aware of
    the condition you were referred for? The local emergency
    room to see what they think about it? I got the impression
    from the responses here that it's possible that you are hours
    away from being permanently blinded.

    -Quick
     
    Quick, Mar 19, 2006
    #14
  15. topwebchoice

    Charles Guest

    When you say referred, did they talk to the retina clinic or did they
    give you the name of the retina clinic and you called and made an
    appointment? Was the retina clinic told you had a detached retina?

    When I had a detached retina, the regular doctors office called the
    retina specialists office and got me an appointment the following day.
     
    Charles, Mar 19, 2006
    #15
  16. topwebchoice

    Charles Guest

    I think that is what needs to be done. Somehow it sounds like the
    urgency was not passed on. And part of that may be that 'topwebchoice"
    does not seem to comprehend the urgency.
     
    Charles, Mar 19, 2006
    #16
  17. This thread is bizzare. My guess is the true diagnosis has something to
    do with a flap tear or somthing else that can LEAD to a detachment as
    compared to a retinal detachment. Or maybe a central serous
    maculopathy, given the VA reduction. Something that can be put off with
    relative safety. I hope the original poster clarifies this at some
    point, and tells us the outcome.

    w.stacy, o.d.
     
    William Stacy, Mar 19, 2006
    #17
  18. topwebchoice

    Dan Abel Guest


    I understand (as a layperson) that it is more like months than hours to
    permanent blindness. It is a permanent vision loss that should be
    worried about.

    That's more a matter of hours. With my first detachment, I called.
    They wanted to see me *now*. Not tomorrow, not later this afternoon,
    not after lunch, but right now.

    I have suffered a permanent vision loss. My left eye sees fine in
    seeing to the right. However, my nose is in the way. I have to turn my
    head to see to the right.
     
    Dan Abel, Mar 20, 2006
    #18
  19. topwebchoice

    topwebchoice Guest

    Charles: To clarify, the ophthalmologist told me in no uncertain terms
    that I had retinal detachment with at least 30% vision loss in the left
    eye (solid 'black curtain' from the top right of visual field). He
    immediately ('stat' was his term) ordered his medical asst. to make the
    first appt. with Retina Northwest. I was present when she did it, and
    she clearly explained that it was for a retinal detachment. I called
    MYSELF last friday to tell Retina Northwest that my vision loss has
    gotten noticeably worse in the previous days, and they bumped up my
    appt. from the 28th of this month to the 24th.

    I dont understand why some in this thread have implied I've mishandled
    this situation. I was posting here for (hopefully) helpful information.
    If anyone knows of any retina specialty clinic here in Portland, Oregon
    which might be somewhat more responsive, I'd really consider it (and
    appreciate any helpful info, please).

    Someone suggested I go to the ER. Why would I do that? I've already
    been diagnosed in no uncertain terms by the first MD/ophthalmologist
    with detached retina. What good would that do?
     
    topwebchoice, Mar 20, 2006
    #19
  20. topwebchoice

    Charles Guest

    I think some of us are surprised that you were not scheduled for an
    appointment sooner than the 28th. My experience was that I was
    schedualed right away. But I am only going on my experience as a
    patient, I am not a doctor, or an expert on the urgency. Personaly if
    they had schedualed me so far off for an appointment, and I had a solid
    black curtain in the top of my visual field I would have found another
    specialist, there must be several in a city the size of Portland or
    went to their office and talked them into seeing me sooner.

    One thing I find dubious is that your initial post stated that the
    clinic wanted to use old fashioned surgical methods rather than a gas
    bubble. If you havn't been examined by the clinic how do you know, or
    how would they know what method they might use? Any repair is going to
    be surgical. Whether they use a buckle or a gas bubble would be
    determined after an examination. In my case they told me they were
    going to use a buckle after the examination but changed their mind and
    did the gas bubble at the surgery.
     
    Charles, Mar 20, 2006
    #20
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