I'm only 30 - Will I ever get my vision back?

Discussion in 'Eye-Care' started by KelleyandHall, May 25, 2005.

  1. I am a 31 year old woman who recently had carotid stenting on my right
    side due to a narrowed and ulcerated carotid. That, however, isn't why
    I'm posting here. I had three episodes of ocular emboli lodge in my
    eye. One right off the ocular disk and the other two were further down
    stream. I have had a blind spot in the top half of my field of vision
    since december, despite the fact that blood is now getting around the
    clot. This new embollism is cutting off blood supply to the rest of my
    central vision and a angiogram proved that no blood is getting around.


    Bottom line, is that none of the doctors I have seen are optimistic
    about my getting my vision back. That just isn't acceptable to me. I
    am only in my early thirties, and most of these BRAOs occur in older
    people, not in people my age. This leads me to believe that there
    hasn't been a significant amount of research done in people my age with
    this affliction.

    Has anyone out there ever heard of a BRAO ultimately resolving and the
    vision returning? Are there any herbal medications (i've heard that
    bilberry and ginko supposedly help the retina) that I could try? Are
    there any major hospitals doing currently doing research on this? My
    doctors have told me that the retina is basically brain tissue and once
    deprived of oxygen, the tissue dies. I simply can't believe that there
    is NOTHING that can be done. And the fact that every single one of my
    doctors has completely destroyed any bit of hope that I have is truly
    unbelievable.

    Is there anyone out there who's had/seen/treated/heard about a
    situation like mine? Please let me know.
     
    KelleyandHall, May 25, 2005
    #1
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  2. "retina is basically brain tissue " Yup and hope it can be helped
    in time!

    Lucentis may be on the market in two years but that is for Macular
    Degeneration. We hope it will be helpful for Starghart's aka Premature
    Macular Degeneration.

    My two sons found ocutech http://www.ocutech.com/ useful but do
    not use it. A 22 and 25 year old with retina disease that was first
    noticed at age 14 and was diagnosed as hysterical blindness till we
    worked our way up the optometrist ladder only to be told nothing can be
    done too.


    Bill
     
    William Wagner, May 25, 2005
    #2
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  3. YES- I'VE HAD A FEW PATIENTS WITH THIS CONDITION. THEY USUALLY STAY THE
    SAME, BECAUSE AS THEY HAVE TOLD YOU, THE NERVE TISSUE DIES AND CANNOT
    REGENERATE. THE ONLY ONES WHO HAVE ANY IMPROVEMENT ARE EARLY ONE, WHERE THE
    DEFECT IS POOR FLOW, BUT NOT SO POOR THAT THE TISSUE DIES. IT THE VESSEL
    RECANALATES SHORTLY AFTER IT HAPPENS, SOME VISION SOMETIMES RETURNS. BUT
    ONLY EARLY ON. SORRY.
     
    David Robins, MD, May 26, 2005
    #3
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