Need help and advice

I am a 38 year old female and have been having some unusual changes
going on in my eye sight for some time now, but it has gotten worse
lately.
I was dx'd at 13 years old with severe nearsightedness and rx'd
glasses.
Over the following 15 years there was only minimal worsening of my
eyesight. Then my eyesight starting getting rapidly worse. I now am
legally blind with the sight in my left eye rated at CF >1 foot and my
right eye rated at CF >3 feet. I now have almost no depth perception,
problems telling colors apart, almost no periphial vision and multiple
blind spots in my central vision. I am also now photophobic. I have
had numerous tests and no cause has been found.
Lately I have had other physical symptoms; such rapid weight gain on a
very calorie limited diet, severe headaches that even come on in my
sleep and wake me up, which pain medication doesn't relieve, extreme
fatigue, and many more.
My last bloodwork came back with some abnormalities; elevated calcium,
sodium, chloride, glucose, wbc, extremely elevated total cholesterol
and ldl and low tsh. My last ct and mri were normal, but they were
over 2 years ago. And my last lumbar puncture was normal.
Have you experienced or seen a case similar to mine -- and found a
cause or SOLUTION? If you have insight, please share it!
Thanks,
Angel

 

I've been dx'd with pre-diabetes and have had it for quite some time
now. My glucose usually stays in the high normals to low highs range,
but is not high enough to warrant a dx of diabetes yet.
All of the vision symptoms started when I was in my late 20's/early
30's.
All of the doctors I've seen could not find a reason for the vision
problems.
I'm curious if a pituitary or thyroid problem may be to blame.
Angel

 

Are you saying that your bva (best corrected vision with emphasis on
correction- NOT unaided vision) is counting fingers?
I'm sorry, but if your aided vision is indeed counting fingers then
there has to be some pathology that is causing it (ie from
degenerative myopic changes to macular pathology etc). There has to
be a diagnosis for this. I assume that you've also have had a
refraction to rule out any refractive changes .

I assume that you're under the care of an opthalmologist although in your
post you didn't state when the last visit was. You only mentioned that
you had some blood tests done.

Your case is much too serious and complex to be discussed in this type
of forum. My only advice is for you to talk to your eye care provider about
your diagnosis and what treatment options, if any, can be done.

frank