Strange vision problem, desperately seeking answers

Discussion in 'Eye-Care' started by januskmb, Aug 2, 2008.

  1. januskmb

    januskmb Guest

    About 6 months ago I began to experience what can be best described as
    a persistant migraine aura, in which I get small colored or black/gray
    spots that appear suddenly then fade over several minutes. They occur
    in 1 eye at a time. I've been getting this every day, many times a day
    ever since.

    The trouble is, is that some of the spots have NEVER gone away, and
    since this all started, I've accumulated about 3 or 4 fixed spots in
    each eye, in random locations. The color the spots had when they
    originally appeared faded over a week or two, but it leaves a small
    blank or blind spot. Letters on pages I read that fall in range of
    these spots vanish. It's just a blank.

    In addition to having several of these permanant blind spots, when I
    look at lines, they look slightly wavy or blurry in isolated areas of
    my peripheral vision.

    I've been to 2 opthomologists, a retina specialist and a neuro-
    opthomologist and I've had general exams, an angiogram, an MRI, visual
    field tests, and a retina thickness test. None of these showed
    anything out of the ordinary.

    I'm rather alarmed at this, as my symptoms are progressing and I don't
    know what to do. I'm 28 yrs old, nearsighted, and I do a lot of
    computer work at my job. I have no known family history of such a
    vision problem.

    Any help, ideas, or advice would be deeply appreciated. Thank you.
     
    januskmb, Aug 2, 2008
    #1
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  2. januskmb

    Don W Guest

    How can you have the symptom of a "permanent blind spots" and not have these
    show up on a field test?

    Don W.

    PS. The retinal thickness test is an OCT?
     
    Don W, Aug 2, 2008
    #2
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  3. januskmb

    januskmb Guest

    To Don:

    I don't know why the spots couldn't be detected. It's very troubling
    to me. I had what I think is called the Humphry test(?) The test is
    the one where they flash little points of light and I clicked on a
    button indicating when I saw wach flash. Also when I look at the
    Amsler grid I can see missing areas and swirling/blurry areas.

    These blind spots and disturbances are very tiny I assume, but they
    are large enough from my perspective that I see gaps in lines and
    missing vision when looking at things that fall in range of these
    spots.

    I wonder if these spots are too tiny and scattered to be successfully
    detected? Are there other tests that could be done?

    There are a few other people I've found on various websites like this
    one who have reported nearly identical symptoms, but most of them have
    had little success in the way of getting any diagnosis or treatment.

    Thank you for responding.
     
    januskmb, Aug 2, 2008
    #3
  4. It would appear that the problem areas are able to respond to the
    bright light of the visual field test, but are not sensitive enough to
    provide normal vision.

    Glenn Hagele
    Executive Director
    USAEyes (R)
    Patient Advocacy Surgeon Certification

    "Consider and Choose With Confidence" (TM)

    Email to glenn dot hagele at usaeyes dot org

    http://www.USAEyes.org

    Lasik Bulletin Board
    http://www.USAEyes.org/Ask-Lasik-Expert/

    I am not a doctor.

    Copyright 2008
    All Rights Reserved
     
    Glenn Hagele - USAEyes.org, Aug 3, 2008
    #4
  5. januskmb

    Don W Guest

    My other question was did you have an OCT (optical coherence tomograph)
    also?
    Was that the "retinal thickness" measurement?

    Don W.
     
    Don W, Aug 3, 2008
    #5
  6. januskmb

    januskmb Guest

    Oops sorry about that. Yes it was an OCT.
     
    januskmb, Aug 3, 2008
    #6
  7. januskmb

    Don W Guest

    I think the gaps in the Amsler grid, undiagnosed, would bother me the
    most.
    After all of these tests, I would hate to suggest an nth opinion, but I
    would tend to lean that way.
    I would defer to professionals on this site for more advice.
    I think daily checking of the Amsler is important to see if there are
    "other" changes.

    Don W.
     
    Don W, Aug 3, 2008
    #7
  8. januskmb

    p.clarkii Guest

    sorry. I don't have any suggestions. you are seeing the right
    people. this is an issue for a retina specialist and/or a
    neuroophthalmologist.
    if it happens in only one eye at a time, then it has to be either a
    problem at the level of the retina or at the optic nerve anterior to
    the chiasm.

    so it sounds like you are saying there is no objective confirmation of
    a visual field defect. if no defects show on a Humphries VF, retinal
    tomogram, or MRI you probably are having difficulty getting very far
    with the doctors you are seeing since they can't correlate your
    complaints with any measurable defect.

    are there any other non-visual neurological issues that you are
    experiencing? muscle weakness, paresthesia?
     
    p.clarkii, Aug 5, 2008
    #8
  9. januskmb

    januskmb Guest

    are there any other non-visual neurological issues that you are
    Nothing of that nature. I feel healthy otherwise and I exercise.

    Only other things that trouble me are bouts of depression and general
    anxiety. Only a couple of weeks prior to noticing this vision problem,
    I had a series of panic attacks and high anxiety.

    About 10 years ago I tested positive for anti-nuclear antibodies
    because I have rosacea and I was sent for some bloodwork at the time
    to check for signs of possible auto-immunie diseases. I saw a
    Rhumatologist for awhile but was never diagnosed as having anything.
    The rosacea was affecting my eyes at that time, I was told I had a
    'nodule' on or in my right eye for about a year, it constantly felt
    like a grit. I was given eyedrops that contained a steroid ingrediant
    and it helped and the problem subsided. I don't take any medications
    at this time. Still have the rosacea on my skin but it seems stable.

    I truly appreciate all of the responses.
     
    januskmb, Aug 5, 2008
    #9
  10. januskmb

    Don W Guest

    John, Too bad we're not in the "Dear" era, I would write you a "Dear John"
    letter!
    All I can say is Q10 is IN my medicine cabinet.
    I tried to write your email but got a "Retun to Sender" message, at that
    time.
    How are you doing?
    And
    What are you doing?
    Reminds me, got some _positive_ zinc papers to (hmmm) digest.

    Don
     
    Don W, Aug 5, 2008
    #10
  11. januskmb

    Don W Guest

    John,

    That one zinc paper by Lengyel, ("High concentration of zinc in sub-retinal
    pigment epithelial", Exp Eye Res. 2007 ) where the concluding line, "Based
    on the evidence provided here we suggest that zinc plays a role in sub-RPE
    deposit formation in the aging eye and possibly also in the development
    and/or progression of AMD"
    This was the paper that (far as I know) had everyone backing off of the 80mg
    of AREDS zinc Rx.

    Beta carotene is a definite no according to Dr. Folk in his latest
    Medrounds. For ARMD.

    I don't see lutein or zeaxanthine anywhere mentioned in your write-up. ????

    In the phototrop references by Feher, they mention improvements, but issue
    no numbers. (But in those papers I only have the abstract). So.....????
    What are the studies that you are referring to?


    Don
     
    Don W, Aug 6, 2008
    #11
  12. januskmb

    januskmb Guest

    Alrighty then...
     
    januskmb, Aug 7, 2008
    #12
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