Subretinal neovascular membrane - recommendations?

Discussion in 'Optometry Archives' started by -L. :, Oct 16, 2004.

  1. -L. :

    -L. : Guest

    Hi All,

    Excuse me if I don't have the terminology right.

    I am 41, female, non-diabetic, near-sighted and have been diagnosed
    today with subretinal neovascular membrane (SNM). It has not affected
    my center of vision but is quite large. I do not appear to have a
    tumor. I am seeking a surgical opinion next Monday and am interested
    in finding out as much info as I can about this condition before I go.

    I am also looking for recommendations for top-notch eye surgery
    centers where I might have this surgery done (willing to travel
    anywhere in the US - I currently live in Portland, OR).

    The doctor who diagnosed this said I do not seem to have macular
    degeneration but from all of the research I have done it seems SNM is
    synonymous with "wet" form of macular degneration (?). I will post my
    story below, as it was explained to me by my doctor. Any info is
    appreciated.

    Thanks,

    -L.


    I have been having a little spot of flashing in my left eye for a few
    months - I thought it was associated with migraien headaches and lack
    of sleep, or from too much computer late at night. Over the last
    three days I developed a blurry spot in my vision in my left eye. I
    saw an opthamologist today and have been diagnosed with subretinal
    neovascular membrane which is the abnormal development of blood
    vessels under the retina, which then bleed. It's an extremely rare
    condition and usually affects older people with macular degeneration
    (m.d.) or is indicative of a tumor. The opthamologist said he doesn't
    see an indication of m.d. or a tumor (the good news), but is sending
    me to a retinal specialist for better characterization and to see if
    it is operable. If so, they will likely do laser surgery to seal the
    blood vessels and stop the bleeding, which could leave me partially
    blind in my left eye (the bad news) or at best, will keep my eyesight
    at it's current level of blurriness. If they are unable to do the
    surgery, the condition will progress until I am completely blind in my
    left eye (worst-case). They are a bit concerned at this point because
    the area that is affected is quite large.
     
    -L. :, Oct 16, 2004
    #1
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  2. -L. :

    Dr. Leukoma Guest

    (-L. :) wrote in
    Try the Texas Retina group in Dallas, Texas.

    DrG
     
    Dr. Leukoma, Oct 16, 2004
    #2
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  3. -L. :

    RM Guest

    I recommend you immediately go to a good retina specialist. I am certain
    that there are at least a few good specialists in the Portland area. Sorry
    I don't have any names. This is a problem that needs to be dealt with
    soon-- it is potentially sight-threatening. However, there are not just a
    few good places to go to in the country. The people you need to see are
    close at hand. Ask a few local eye doctors (both optometrists and
    ophthalmologists) who the best retinal specialists are in your area and when
    you start to hear the same name mentioned a few different times you know who
    to contact! Treating subretinal neovascular membranes is not a rare
    procedure.

    -------------
     
    RM, Oct 17, 2004
    #3
  4. -L. :

    Dr. Leukoma Guest

    Perhaps there are retinal specialists in the Portland area who have
    estensive experience with this type of surgery. However, I know that
    retinal surgeons within the Texas Retina group have been doing this for at
    least a decade. If you want more information, please don't hesitate to
    contact me.

    Drg
     
    Dr. Leukoma, Oct 18, 2004
    #4
  5. -L. :

    -L. : Guest


    Thanks to all who responded. I saw the first specialist today and am
    now doing research to try to determine the best course of action -
    will be seeking 2nd and 3rd opinions. Per three physicians, this
    condition is rare in someone my age and the presentation is
    unexpected. The angiogram was much worse that I had hoped for, but it
    does appear operable (in first doc's opinion) which is the good news.

    Thanks again, and hopefully I will have a positive outcome soon. Will
    post an update if anyone is interested.

    -L.

    PS/Drg - Have been reading research papers from the Texas group which
    have been helpful, so thanks for the rec.
     
    -L. :, Oct 19, 2004
    #5
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