Visudyne for pts. without macular degeneration

Discussion in 'Optometry Archives' started by -L. :, Oct 26, 2004.

  1. -L. :

    -L. : Guest

    Hi All,

    I'm interested in reading if anyone has had Visudyne photodynamic
    treaments when they do not have macular degeneration. What was your
    condition and what was the outcome? I am 41, non-diabetic, and have
    an "idiopathic" subretinal neovascularization that is bleeding
    (subfovial as of now). I have loss sight in the left side of my left
    eye - completely blurry. I am scheduled to have Visudyne treatment
    soon and am looking for other younger patients who have had a similar
    condition. My only other choice is laser surgery and I have chosen
    Visudyne as it appears to be less damaging to the retina . Any
    feedback appreciated.

    TIA,
    -Lyn
    (idontmind (at) hotmail (dot) com is my real address - the onein the
    header is bad.)
     
    -L. :, Oct 26, 2004
    #1
    1. Advertisements

  2. -L. :

    CarlosWA Guest

    I am 60. I had the PDT to remove some fluid from behind the retina.
    This was an off-label treatment. The treatment takes about 2 minutes
    and is painless. Before the treatment they will likely do an
    angiogram.

    After the treatment you have to avoid sun, halogen and other strong
    lights for 48 hrs.

    Your vision may decrease but by the 7th day it comes back to what yo
    had before the PDT. The PDT take 2 to 4 weeks to take effect. In my
    case my vision inproved in the 4th week. The liquid was removed
    (checked b the doctor at 4 weeks). However by the 6th week my vision
    was reduced to what it was before the treatment. I had been warned
    that repeated treatments may be required. I am schedule to see the
    doctor next week 8 weeks after the 1st treatment.

    Good luck.

    Carlos
     
    CarlosWA, Oct 30, 2004
    #2
    1. Advertisements

  3. -L. :

    -L. : Guest

    Thanks, Carols. I already had the angiogram and it was worse than we
    expected, but it still appears to be operable. I will be having PDT
    Tuesday. Will let you know how it goes.

    I was told I may need a total of 2-3 surgeries before the blood
    vessels are sealed completely. And even then, there is no guarantee,
    of course. ;)

    Please keep me posted as to how your treatments go. Most of the data
    I have read are WRT ARMD, and since that isn't what I have, I am a bit
    wary of the treatment plan. I have two medical opinions so far, and
    one report due this week, so am going ahead with the PDT.

    Thanks for your input - it's nice to know I'm not alone.
    -L.
     
    -L. :, Oct 31, 2004
    #3
  4. -L. :

    CarlosWA Guest

    What is WRT ARMD?

    Carlos

     
    CarlosWA, Oct 31, 2004
    #4
  5. -L. :

    -L. : Guest

    "...with regard to age-related macular degeneration."

    Sorry for the acronyms. I was probably tired. :)

    -L.
     
    -L. :, Oct 31, 2004
    #5
    1. Advertisements

Ask a Question

Want to reply to this thread or ask your own question?

You'll need to choose a username for the site, which only take a couple of moments (here). After that, you can post your question and our members will help you out.