wrinkle on the retina

Discussion in 'Optometry Archives' started by CarlosWA, Nov 27, 2003.

  1. CarlosWA

    CarlosWA Guest

    The doctor noticed a wrinkle on the retina of one of mu eyes in July
    2002 which did not affect my vision. About three weeks ago I noticed
    that vertical lines were distorted and my reading vision has been
    significantly decreased . An emergencydocor saw me on Nov 17 and told
    me that the wrinkle had increased. I will be seing my regular doctor
    on Monday.

    I read that the treatment for the wrinkle (macular pucker) is an
    operation. Should this operation be made as soon as possible? If not,
    how long can it wait without creating irreversible effects?

    Thanks,
    Carlos

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    CarlosWA, Nov 27, 2003
    #1
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  2. CarlosWA

    czf Guest

    GET TO A RETINAL SURGEON RIGHT NOW!

    I have had two episodes of idiopathic posterior uveitis which caused MASSIVE
    macular puckering, and I am now legally blind.

    RUN!
     
    czf, Nov 27, 2003
    #2
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  3. I tend to agree. If your regular retina specialist is not available
    at his or her office, go through your hospital's emergency room or
    urgent care center and have them get you seen by the on-call retina
    specialist. You should not wait.

    Glenn Hagele
    Executive Director
    Council for Refractive Surgery Quality Assurance
    http://www.USAeyes.org
    http://www.ComplicatedEyes.org
    glenn dot hagele at usaeyes dot org

    I am not a doctor.
     
    Glenn Hagele - Council for Refractive Surgery Qual, Nov 27, 2003
    #3
  4. CarlosWA

    CarlosWA Guest

    I am scheduled to see my retina specialist on Mondday. I was seen at
    hspital emergency on Nov 17. Since then there has been very little
    chnage. Thank you for your suggestions. I am in Canada and we have
    government insurance. The problem is that we may not get the treatment
    when we need it. Doctors are extremely busy. I just wanted to get an
    idea of how long I can wait for an operation. I guess it is hard to
    tell without an specilaist lookint at the eye. I just wanted to know
    how much to press my doctor for early surgery or whether I should fly
    to another country and get paid treatment which will be immediate if
    needed.

    Txs,
    Carlos


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    CarlosWA, Nov 27, 2003
    #4
  5. CarlosWA

    John Blake Guest

    ====

    Agree that seeing a retina specialist is/was
    a good idea. I developed a similar problem
    with one eye in '92, but there's been little
    change since then. Instead of typical macular
    pucker caused by a film-like obstruction of
    the macula, this was diagnosed as retinal
    fibrosis, a macula/retina wrinkling caused by
    new tiny vein growth. Alternating letters in
    text blur from the wrinkling (different focal
    planes), and an Amsler Grid pattern (try a
    gooogle.com search) will be warped according
    to the severity of the wrinkling. The
    specialist did not suggest surgery, which
    itself can create future problems. Clearly
    it's important to try and pin down the cause
    of retinal/macula wrinkling, then a solution,
    if possible. Consider diabetes and avoiding
    any alcohol.
    John
     
    John Blake, Nov 27, 2003
    #5
  6. CarlosWA

    czf Guest

    Whoa, John, how often do you have fluoroscein angiography done?
    Neovascularization can cause blindness, too. When caught early, they can be
    lasered off, usually resulting in only the loss of the vision that you
    currently experience (look at your Amsler). If left unchecked,
    neovascularization can multiple rapidly (which is why you should do your
    Amsler's daily).

    Neovascularization set in over my macular puckers (caused by idiopathic
    posterior uveitis) and now my retinas look like a tropical rain forest. But
    my retinal surgeon won't touch them for fear that I could potentially lose
    what little sight I have left.

    I wish the community of retinal surgeons had been a little more aware when
    this first happened to me 20 years ago (I even had specialists from Duke fly
    in just to look at my retinas - the condition was so foreign back then).
    Fortunately, great strides have occurred during these years and folks
    experiencing new symptoms *now* have a much greater chance of keeping more
    of their sight.

    Right now I'm waiting for a) an undifferentiated stem cell to regenerate my
    retinas - banned in the US, b) a brain microchip/eyeglass videocamera
    setup - research halted in the US, c) retinal transplant - first attempts
    haven't succeeded, or d) a Geordi LaForge visor - whichever comes first.

    Okay, I'll get off my soapbox now ;-)
     
    czf, Nov 28, 2003
    #6
  7. CarlosWA

    CarlosWA Guest

    You seem to be able to write without typing errors. This impaired
    vision is new to me and I tried to adjust my computer display setings.
    Not easy... or is there anoter way? I made adjustments in Windowns >
    Display > Properties. Still when I use applications (IE, WordPerfect,
    Word, Quicken, Eudora, Adobe Photo Elements and others) I find that I
    have to adjust each one which in turns changes the display of others.
    This is taking me much time and I would appreciate receiving any tips
    or being pointed to web sites with instrutions on how to this
    efficiently.

    Txs, Carlos


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    CarlosWA, Nov 28, 2003
    #7
  8. CarlosWA

    czf Guest

    First of all, I'm from the "old school" - when I went to high school, you
    could not graduate without learning how to type at *least* 40 wpm with no
    errors - on a MANUAL typewriter! So I've always had excellent touch typing
    skills. Keyboards come with two raised lines on the F and the J keys - I
    feel for that position, and then I'm golden.

    My level of sight loss is to the point where I cannot read at all. There
    was no "in between time" where I could use a computer with larger fonts or
    anything. It went from all to nothing. I use a screenreading program
    called JAWS for Windows. It works with text as well as graphics. Perhaps
    some of our macular degenerations folks (Dan Roberts??) may be able to help
    you with monitor settings.

    Keep me (us) posted on your progress. We CARE!
     
    czf, Nov 30, 2003
    #8
  9. CarlosWA

    CarlosWA Guest

    Thanlk you all who reply to my posts.

    Respecting my eye.

    Yestesrday I saw my retine specialist and he found I had 4 problems in
    the eye.

    1 Possible liquid in the eye. He needs to test to ensure all is
    well. I will have an Angiogram. I did have liquid in the eye about 16
    years ago and no problem sonce so I expect that the test will show no
    new problems.
    2 Tear in he retina (small). He will treat it with laser on Dec
    10. This is required before the wrinkle can be removed. This will
    cause a wait time for the removal of the wrinkle of 3 months. I wonder
    if the wrinkle caused the tear.
    3 Cataracts in both eyes Severity of 1 in scale of 4. He needs
    the one on the right eye removed before he can do surgery to remove
    the wrinkle. He asid the needs a clear vision of the back of the eye.
    He told me that after this surgery no significant wait is required to
    remove the wrinkle because they affect different parts of the eye.
    4 Operation to remove wrinkle hopefully in 3 months.

    Well...there is hope. Does this process sound OK?

    Respecting the computer:

    Yes I will have to learn touch typing.
    I managed to set up my monitor fonts and colors to the point where I
    can read them, Still there are some applications showing unredable (by
    me) colors for some panels. I will look into JAWS for Windows a
    program that reads the text on the screen. I will also be looking into
    voice to text capture programs.

    I discovered that Windows XP under Programs > Accessories >
    Accessibility> Magnifier has a feature that creates a windo on the top
    of the screen that magnifies to any desired size the text where you
    place your cursor or mouse pointer. It has been very helpful.

    Regards,
    Carlos




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    CarlosWA, Dec 2, 2003
    #9
  10. CarlosWA

    czf Guest

    I am not a doctor, but it sounds like your doctor did an extensive
    examination and has a plan. Excellent news, Carlos!
    I am so happy to hear that you have found some adaptive technology to help
    you out in the meantime.

    To quote a line from an old folk song:

    "Don't it always seem to go
    That you don't know what you've got til it's gone..."

    Good luck, Carlos, and drop us a line after the "wrinkle removal" surgery.
    I am most curious to see how it all goes. Best wishes!
     
    czf, Dec 2, 2003
    #10
  11. Yes, this sounds like an acceptable treatment plan.

    Glenn Hagele
    Executive Director
    Council for Refractive Surgery Quality Assurance
    http://www.USAeyes.org
    http://www.ComplicatedEyes.org
    glenn dot hagele at usaeyes dot org

    I am not a doctor.
     
    Glenn Hagele - Council for Refractive Surgery Qual, Dec 2, 2003
    #11
  12. CarlosWA

    CarlosWA Guest

    The tear was treated on Dec 10. It took about 2 hrs with waiting time.
    When I arrived at the clinic I received drops to enlarge the pupil and
    anaesthetic. After about 80 minutes I saw the doctor. He asked me to
    lie on a bed on my street clothes. No nurse was present. He gave me
    more drops. I spent about 20 minutes with the doctor. There was a
    machine that was moved over the bed. The doctor looked at the eye
    trhough some hand-held instruments and applied the laser for about two
    minutes. The process is not painful but I could feel the pulses of the
    laser and see flashing lights. He did not ask me to take any
    post-operative precautions except when I asked about my yoga routine
    he said not to do head stands for a week. The eye was a little sore
    the res of that day and the next day. Also very little tiny debris
    came out of the eye for about two fays. Afterwards I felt as well as
    before the operation.

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    CarlosWA, Dec 20, 2003
    #12
  13. CarlosWA

    czf Guest

    Wonderful, Carlos! I have been waiting to hear about your progress!

    How is your vision now?

    I am so grateful to you for keeping us posted about your treatment!

    Thank you so much.
     
    czf, Dec 20, 2003
    #13
  14. CarlosWA

    CarlosWA Guest

    My vision has not improved. It is supposed to improve after they
    remove the wrinkle from the retina. That will take place after they
    remove a cataract. I still have a few months to wait for the eye to
    heal beetwen operations.

    When the wrinkle affected my vision in mid-November, within a couple
    of days my reading vision decreased significantly and I saw a bend on
    vertical lines. I think my vision got slightly worse over a period of
    two weeks but it has now been stable for three weeks. I can function
    with magnifying glasses for reading and computer software that magnify
    the monitor display.

    Carlos


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    CarlosWA, Dec 21, 2003
    #14
  15. What kind of surgery removes wrinkles from the retina. I would go for that.

    My impression of retinal surgeryu is that it only does any if your vision is
    already terrible.

    Bill
     
    Repeating Rifle, Dec 21, 2003
    #15
  16. CarlosWA

    CarlosWA Guest

    If you do a Google search with "macular pucker" or [+wrinkle +retina
    +surgery] you will obtain much information. From my memory:

    The operation is outpatient surgery and last about 1 hr.
    Local anaesthetic is usually used.
    The doctor makes an incision on the side of the eye to get to the back
    of the eye and peel odd\\ff a layer of the retina removing the
    wrinkle.
    The stitches dissolve and they are under the eyelid.
    Microscopic surgery is used with tiny instruments.
    You wear an eye patch for a week.
    Post operation treatment is eye drops for pain and infection.
    Your vision begins to improve after two weeks and gradually improve
    during two months.
    9 out of 10 times you have improved vision. At the minimum any vision
    distortion disappears.
    The risk is low (infection and haemorrhage)
    A cataract is likely to develop in the operated eye.
    Doctors only operate if the wrinkle is affecting your vision. I had a
    wrinkle for a year before if got worse and now I need an operation.
    50% of the time the wrinkle will need no operation.

    Carlos


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    CarlosWA, Dec 21, 2003
    #16
  17. CarlosWA

    gen Guest

    can anyone help me please, am looking for the local distributor or any
    shop selling the naturalis range of skin and body care products, from
    this company http://www.naturalisproducts.com . looking for this
    urgently. for those who have not come across it, its some foodbased
    anti-aging products. i googled for this and received result showing its
    available at http://www.organiconline.com.sg. i need this urgently
    but shipping from singapore will take some time, if anyone is
    distributing this please contact me at
    urgently. i have a group of us looking to buy this. thanks!
     
    gen, Jan 2, 2005
    #17
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